Off
Interstitial Lung Disease Research and Clinical Trials
Research
At the RPA Interstitial Lung Disease Unit, we are actively involved in clinical, translational and discovery research. Our mission is to transform the lives of people living with interstitial lung disease. This large research team, led by Professor Tamera Corte, is closely linked with the University of Sydney. All the health professionals in our team participate in research, and we have opportunities for specific research fellows, PhD candidates, post-doctoral fellows and research assistants.
Our research interests include: early and accurate interstitial lung disease diagnosis, novel diagnostic techniques, molecular and radiological biomarkers, novel therapeutics, environmental and genetic causes and self-management of interstitial lung disease.
|
All patients attending RPA Interstitial Lung Disease Clinic will be invited to participate in the Australasian Interstitial Lung Disease Registry. This bi-national registry includes patients with all interstitial lung disease subtypes, reflecting real world practice at 21 clinics across Australia and New Zealand. The aims of the Registry are to provide a valuable resource for high quality interstitial lung disease research, and ultimately to improve care for patients across Australia and NZ. The Registry is linked to Biospecimen Biobank. |
|
|
Our Interstitial Lung Disease Unit is the lead site for the Centre of Research Excellence for Pulmonary Fibrosis. A nationally coordinated, clinically focused research program addressing the urgent need for more effective, personalised approaches to identify and better manage fibrotic lung diseases, as well as to educate the public and train future generations of researchers in pulmonary fibrosis. The CRE-PF coordinates Australia’s national research platforms and oversees research into pulmonary fibrosis across Australia with a true bench to bedside approach. |
|
|
The CRE-PFs translation and education program of work is overseen by the Translation, EDucation and Support (TEDS) sub-committee. |
Research Grants and Awards
Many of our research team have been the recipients of research grants and awards.
|
Professor Tamera Corte was the second female recipient of the RPA Research Medal in 2022. She was awarded University of Sydney’s Makers and Shapers award in 2022, and the Lung Foundation Australia’s Lung Legend Award in 2021. |
|
Clinical Associate Professor Lauren Troy was awarded Sydney Local Health District's 2022 Clinical Trial of the Year for the COLDICE trial – a world-first investigation into a new technique for performing lung biopsies. Associate Professor Troy was also the recipient of the inaugural PACT Grant-in-Aid for Investigator Led Pulmonary Fibrosis Clinical Research in 2019. |
|
Dr Alan Teoh and Dr Laura Glenn were awarded the CREATE Grant-in-Aid for new collaborative research between CREATE Fellows (CRE-PF and Lung Foundation Australia) in 2021. |
| Dr Laura Glenn was awarded the Lung Foundation Di Cox PhD Scholarship in Idiopathic Pulmonary Fibrosis Research in 2019. |
| Dr Adelle Jee was awarded the Lung Foundation Australia's David Wilson PhD Scholarship. |
Find out more about Respiratory Medicine Research grants and publications in Sydney Local Health District.
Clinical Trials
The Interstitial Lung Disease Clinical Trials Unit is made up of specialist research nurses and interstitial lung disease specialist doctors. Our team facilitates the conduct of a range of international sponsor-led and investigator-led clinical trials so that our patients can be at the forefront of advancements in interstitial lung disease treatment. Since its inception in 2010 the Interstitial Lung Disease Clinical Trials Unit has achieved:
-
Participation in over 30 sponsor-led clinical trials resulting in the development of current gold standard therapies for Idiopathic Pulmonary Fibrosis, Scleroderma and Pulmonary Alveolar Proteinosis
-
Participation in investigator-led studies that have resulted in improved outcomes for patients, including the COLDICE study which has resulted in a change in practice in the collection of lung biopsies to vastly improve patient comfort and reduce length of stay
-
Recruitment of over 200 patients from Sydney Local Health District and across NSW
Visit the Lung Foundation Australia to find out more about recruiting trials.
Recruiting trials
Useful resources
|
Pulmonary Fibrosis Australasian Clinical Trial Network (PACT) |
A collaboration of passionate and dedicated specialists working with Lung Foundation Australia to design and implement clinical trials and studies that will improve outcomes for patients with Pulmonary Fibrosis. PACT’s objective is to ensure patients with pulmonary fibrosis, their families and health care professionals are aware of, and have access to, up-to-date clinical trial information, and the latest advances in Pulmonary Fibrosis treatment. |
|---|---|
| Australian Idiopathic Pulmonary Fibrosis Registry (AIPFR) |
The Australian Idiopathic Pulmonary Fibrosis Registry (AIPFR) is a unique research platform that collects information on patients living with Idiopathic Pulmonary Fibrosis to better understand this rare and complex disease. The AIPFR was the first national Idiopathic Pulmonary Fibrosis Registry established in the world, and operates to facilitate collaboration across institutions, states and disciplines to further research into Idiopathic Pulmonary Fibrosis. With established ties to recognised global centres, the AIPFR provides a central source of rich data to facilitate both national and international epidemiological, medical and clinical trials. The AIPFR is no longer recruiting new patients. |
Interstitial Lung Disease Research and Clinical Trials
Interstitial Lung Disease Clinical Trials Unit