A NSW Government website


Cancer Care Research Unit

The Cancer Nursing Research Unit is helping to meet the needs of people in NSW by undertaking research in supportive care in cancer that focuses on patient and family experience.

Selected Grants

Amount awarded Grant and project details
$6,499,695 Medical Research Future Fund, 2021-2026
Transforming Wound Care through Telehealth in Aged Care
Investigators: Luscombe, G., Banbury, A., Shaw, T., Makeham, M., Barakat-Johnson, M., Salvado, O., Grieve, L., Ahmet, D., & Webster, R
$1,416,364 NHMRC, 2019-2023
Improving outcomes for cancer patients who smoke: The Care to Quit stepped wedge randomization trial to implement best-practice cessation care in cancer centres
Investigators: Paul C, Warren G, Vinod S, Meiser B, Stone E, Barker D, White K.

Our Publications


Allison, K. R., Patterson, P., Guilbert, D., Noke, M., & Husson, O. (2021). Logging On, Reaching Out, and Getting by: A review of self-reported psychosocial impacts of online peer support for people impacted by cancer. Proceedings of the ACM on Human-Computer Interaction, 5(CSCW1), 95. doi: 10.1145/3449169
Anakapu K, Wilson M, Findlay M, Brown T, Bauer J. Nutritional outcomes in patients undergoing transoral robotic surgery for head and neck cancers compared to conventional open surgery. A systematic review. Head Neck. 2021;doi: 10.1002/hed.26913. (Q1)
Balante J, van den Broek D, White K. (2021) How does culture influence work experience in a foreign country? An analysis of the challenges faced by internationally educated nurses. Int Journal of Nursing Studies, 118, 103930.
Balante J, van den Broek D, White K. (2021) Mixed-methods systematic review: Cultural attitudes, beliefs and practices of internationally educated nurses towards end-of-life care in the context of cancer. Journal of Advanced Nursing, 77(9), pp. 3618-3629.
Barakat-Johnson M, Basjarahil S, Campbell J, Cunich M, Disher G, Geering S, Ko N, Lai M, Leahy C, Leong T, McClure E, O'Grady M, Walsh J, White K, Coyer F. (2021) Implementing best available evidence into practice for incontinence-associated dermatitis in Australia: A multisite multimethod study protocol. Journal of Tissue Viability, 30(1), pp.67-77.
Barakat-Johnson, M., Beeckman, D., Campbell, J., Dunk, A. M., Lai, M., Stephenson, J., & Coyer, F. (2021). The development and psychometric testing of a knowledge tool on incontinence-associated dermatitis for clinicians (KnowIAD tool). Journal of Wound Ostomy & Continence Nursing.49(1)70-77.
Barakat-Johnson, M., Lai, M., Stephenson, J., Buhr, H., Campbell, J., Dolton, A., Jones, S., Leong, T., Reddy, N., Coyer, F. (2021). Efficacy of a heel offloading boot in reducing heel pressure injuries in patients in Australian intensive care units: a single-blinded randomised controlled trial. Intensive and Critical Care Nursing. In print
Barakat-Johnson, M., Stephenson, J., Basjarahil, S., Campbell, J., Cunich, M., Disher, G., Geering, S., Ko, N., Lai, M., Leahy, C., Leong, T., McClure, E., O'Grady, M., Walsh, J., White, K., & Coyer, F. (2021). Clinician knowledge of incontinence-associated dermatitis: A multisite survey of healthcare professionals in acute and sub-acute settings. Journal of Wound Ostomy & Continence Management. 49(2). In print.
Bloomfield J, Crawford T, & Fisher M. Registered Nurses' understanding of academic honesty and its perceived relationship to professional conduct: Findings from a cross-sectional survey conducted in Southeast Asia. Nurse Education Today. 65, doi: 10.1016/jnedt.2021.104794
Bloomfield J, Schneider CR, Lane S, Stehlik P,  Frotjold A. Evaluating a large-scale introductory interprofessional education workshop for developing interprofessional socialization in medical, nursing, and pharmacy students: a quasi-experimental study. Nurse Education Today. 99(2) doi:10,1016/j.nedt.2021.104794
Bui, U.T, Tehan, P. E., Barakat-Johnson M., Carville, K., Haelser, E., Lazzarini, P.A., Twigg, S.M., Weller, C., and Finlayson, K. (2021). A scoping review of research in chronic wounds: protocol. Wound Practice and Research. 29(4). doi: https://doi.org/10.33235/wpr.29.4
Campbell R, Ju A, King M, Rutherford C. (2021) Perceived benefits and limitations of using patient-reported outcome measures in clinical practice with individual patients: A systematic review of qualitative studies. Quality of Life Research, published online 27/09/2021.doi: 10.1007/s11136-021-03003-z.
Chan DL, Clarke SJ, Engel A, Diakos, C. I. Pavlakis, N, Roach PJ, Bailey DL, Bauer JD, Findlay M. Computed tomography (CT)-defined sarcopenia and myosteatosis are prevalent in patients with neuroendocrine neoplasms (NENs) treated with peptide receptor radionuclide therapy (PRRT). Eur J Clin Nutr. 2021.doi: 10.1038/s41430-021-00915-4. (Q1)
Charter E, Findlay M, Clark J, White K. (2021) Support group preferences for patients with head and neck cancer: cross-sectional survey, Australian Journal of Otolaryngology. Vol. 4 No. 13 pp. 119-26
Conlon, D., Raeburn, T & Wand T (2021) Decision-making processes of a nurse working in mental health, regarding disclosure of confidential personal health information of a patient assessed as posing a risk Collegian 28, 261-267
Costa SDJ, Mercieca-Bebber R, Rutherford C, Tait M, King MT. (2021) How is quality of life defined and assessed in published research? Quality of Life Research, 30(8):2109-2121.
Coyer, F., Barakat-Johnson, M., Campbell, J., Palmer, J., Parke, R. L., & Doubrovsky, A. (2021). Device-related pressure injuries in adult intensive care unit patients: An Australian and New Zealand point prevalence study. Australian Critical Care. 34(6), 561-568.
Coyer, F., Chaboyer, W., Lin, F., Doubrousky, A., Barakat-Johnson, M., Brown, W. et al. (2021). Pressure injury prevalence in Australian Intensive care units: A secondary analysis. Australian Critical Care. Available online 27 November.
Cruz-Rivera S, Stephens R, Mercieca-Bebber R, Ameeta Retzer, Rutherford C, Price G, Slade A, Aiyegbusi OL, Edge P, Gosden L, Roberts L, Verdi R, Wilson R, Calvert M. (2021) 'Give Us The Tools!' development of knowledge transfer tools to support the involvement of patient partners in clinical trial protocol development with patient-reported outcomes, in accordance with SPIRIT-PRO Extension. BMJ Open, 11(6):e046450. doi: 10.1136/bmjopen-2020-046450
Dalgleish, L., Barakat-Johnson, M., Campbell, J., Finlayson, K., Ingelman, J., Beathe, A.,   Parker, C., & Coyer, F. (2021). Understanding the skin failure conversation: A scoping review. Advances in  Skin & Wound Care, 34, 542-550.
Davids J, Murphy M, Moore N, Wand T, Brown M. (2021) Exploring staff experiences: A case for redesigning the response to aggression and violence in the emergency department. International Emergency Nursing. 57, doi: 10.1016/j.ienj.2021.101017
Delgado, C., Roche, M., Fethney, J. & Foster, K. (2021) Mental health nurses' psychological well-being, mental distress, and workplace resilience: A cross-sectional survey. International Journal of Mental Health Nursing, https://doi.org.10.1111.inm.12874
Dinh M, Hutchings O, Bein K, Shaw J, Raut A, Berendsen Russell S, Jagers D, Thapa R, Fox G, Edwards J, Wand T, Britton W. (2021) Emergency department presentations by residents of Sydney quarantine hotels during the COVID-19 outbreak. Medical Journal of Australia 214(10):473-474.
Edwards A, Baldwin N, Findlay M, Brown T, Bauer J. Evaluation of the agreement, adoption, and adherence to the evidence-based guidelines for the nutritional management of adult patients with head and neck cancer among Australian dietitians. Nutr Diet. 2021; doi: 10.1111/1747-0080.12702. (Q3)
Findlay M, Bauer J, Shaw T, White K, Lai M, Rankin N. (2021) 'There's a lot of talent in the room but it's only really the medical talent that gets heard': A qualitative exploration of multidisciplinary clinicians' perspectives of optimal nutrition care of patietns with head and neck cancer, Supportive care in Cancer', 29(11), pp.6399-6409. https://doi.org/10.1007/s00520-021-06162-4
Findlay M, White K, Brown C, Bauer JD. Impact of nutritional status and skeletal muscle status on outcomes in patients undergoing radiotherapy for head and neck cancer. J Cachexia Sarcopenia Muscle. 2021 12(6):2187-2198. (Q1) *Top 10% journals by CiteScore
Findlay M, White K, Stapleton N, Bauer J. (2021) Is sarcopenia a predictor of prognosis for patients undergoing radiotherapy for head and neck cancer? A meta-analysis. Clinical Nutrition, 40(4), pp.1711-1718. (cited by 3)
Gauci, J., Lawn, S., Bloomfield, J., Towns, S., & Steinbeck, K. (2021) Effectiveness of self- management programs for adolescents with a chronic illness: a systematic review. Journal of Advanced Nursing. 77(9) doi:10.1111/jan.14801
Hulbert-Williams, N. J., Hulbert-Williams, L., Patterson, P., Suleman, S., & Howells, L. (2021). Acceptance and commitment therapy (ACT)-enhanced communication skills: development and evaluation of a novel training programme. BMJ Supportive & Palliative Care. doi: 10.1136/bmjspcare-2020-002786
Hutchinson, C.,L. Curtis, K. McCloughen, A., Qian, S.  Yu, P. & Fethney, J. (2021) Predictors and outcomes of patients that return unplanned to the Emergency Department and require critical care admission: A multicenter study, Australasian Emergency Care, https://doi.org/10.1016/j.auec.2021.04.003
Ju A, White K, Wiltink L, Faiz N, Koh C, Candelaria D, Rutherford C. (2021) Prevalence of long-term patient-reported consequences of treatment for colorectal cancer: a systematic review. Annals of Colorectal Research, 9(3), pp. 1-19.
Juraskova I, Laidsaar-Powell R. Keast R, Schofield P, Costa D, Kay J, Turner S, Koczwara B, Saunders C, Jefford M, Yates P, Boyle F, White K, Miller A, Morton R, Butt Z, Butow P. (2021) The eTRIO trial: Study protocol of a randomized controlled trial of online education modules to facilitate effective family caregiver involvement in oncology, BMJ Open, 11(5), e043224. (cited by 1)
Kamaladasa, D. S., Sansom-Daly, U. M., Hetherington, K., McGill, B. C., Ellis, S. J., Kelada, L., Donoghoe, M. W., Evans, E., Anazodo, A., Patterson, P., Cohn, R. J., & Wakefield, C. E. (May 2021). How Are Families Faring? Perceived family functioning among adolescent and young adult cancer survivors in comparison to their peers. Journal of Adolescent and Young Adult Oncology. doi:10.1089/jayao.2020.0215
King M, Tait MA, Campbell R, Müller F, Rutherford C, Beckmore C, Chima S, Langbecker D, Shaw J, Mercieca-Bebber R, Improving the patient-reported outcome sections of clinical trial protocols: a mixed methods evaluation of educational workshops, Quality of Life Research, accepted 3 August 2021 (preprint online http://doi.org/10.21203/rs.3.rs-720930/v1).
Kuek , J., Raeburn, T, & Wand T (2020): Asian perspectives on personal recovery in mental health: a scoping review, Journal of Mental Health, DOI: 10.1080/09638237.2020.1818709
Landi, G., Duzen, A., Patterson, P., McDonald, F.E.J., Crocetti, E., Grandi, S., & Tossani, E. (2021). Illness unpredictability and psychosocial adjustment of adolescent and young adults impacted by parental cancer: The mediating role of unmet needs. Supportive Care in Cancer. Advance online publication. doi: 10.1007/s00520-021-06379-3
Maharaj AD, Evans SM, Zalcberg J, Ioannou L, Graco M, Croagh D, Pilgrim CH, Dodson T,  Goldstein D, Philip J, Kench JG, MerrettN, Neale RE, White K, Evans P, Leong T. (2021) Barriers and enablers to the implementation of multidisciplinary team meetings: A qualitative study using the theoretical domains framework. BMJ Quality and Safety, 20(10), pp.792-803. (cited by 3)
Mellors K, Ye X, Van Den Brande, J, Wai Ray Mak, T, Brown, T, Findlay, M, Bauer, J. Comparison of prophylactic percutaneous endoscopic gastrostomy with reactive enteral nutrition in patients with head and neck cancer undergoing radiotherapy or chemoradiotherapy: A systematic review. Clin Nutr ESPEN. 2021;46:87-98. (Q2)
Monrouxe L & Bloomfield J. Specialty Grand Challenge: Diversity Matters in Healthcare Educations Research. Frontiers in Medicine, 8: 765443, doi: 10.3389/fmed.2021.765443
Mylvaganam, G., Allanson, E., Allanson, B., Philp, S, Pather, S, Farrell, R., Carter, J & Tejada-Berges, T. (2021). Assessment of current follow-up for complete molar pregnancies: A single centre review. ANZJOG, 61, 213-216
Ní Shé, É., McDonald, F. E.J., Mimmo, L., Ross, X.S., Newman, B., Patterson, P., & Harrison, R. (2021). What are the psycho-social and information needs of adolescents and young adults' cancer care consumers with intellectual disability? Systematic review of evidence with recommendations for future research and practice. Children. 8(12), 118. doi: 10.3390/children8121118
Nickel B, McCaffery K, Houssami N, Jansen J, Saunders C, Spillane A, Rutherford C, Dixon A, Barratt A, Stuart K, Robertson G, Hersch J. (2020) Views of healthcare professional about the role of Active Monitoring in the management of Ductal Carcinoma in Situ (DCIS): qualitative interview study. The Breast, published online 21/09/2020. doi: 10.1016/j.breast.2020.09.002
Pathrose, S.P., Everett, B., Patterson, P., Ussher, J., Salamonson, Y., McDonald, F.E.J., Biegel, G., Ramjan, L. (2021). Mindfulness-based interventions for young people with cancer: an integrative literature review. Cancer Nursing. Advance online publication. doi: 10.1097/NCC.0000000000000821
Patterson, P., Agostino, N.M.D., McDonald, F.E.J., Church, T.D., Costa, D.S.J., Rae, C.S., Siegel, S.E., Hu, J., Bibby, H., & Stark, D. (2021). Screening for distress and needs: Findings from a multinational validation of the Adolescent and Young Adult Psycho-Oncology screening tool with newly diagnosed patients. Advance online publication. Psycho-Oncology. doi: 10.1002/pon.5757
Patterson, P., Allison, K. R., Bibby, H., Thompson, K., Lewin, J., Briggs, T., Walker, R., Osborn, M., Plaster, M., Hayward, A., Henney, R., George, S., Keuskamp, D., & Anazodo, A. (2021). The Australian Youth Cancer Service: Developing and monitoring the activity of nationally coordinated Adolescent and Young Adult Cancer Care. Cancers., 13(11), 2675. doi.org/10.3390/cancers13112675
Patterson, P., McDonald, F. E. J., Kelly-Dalgety, E., Luo, A., & Allison, K. R. (2021). The Development and Process Evaluation of PEER: A Camp-based Programme for Adolescents Impacted by Cancer. Journal of Child and Family Studies. 30(11), 2627-2640. doi: 10.1007/s10826-021-02061-8
Patterson, P., McDonald, F.E.J., Kelly-Dalgety, E., Lavorgna, B., Jones, B.L., Sidis, A.E., & T. Powell. (2021). Development and evaluation of the Good Grief program for young people bereaved by familial cancer. BMC Palliative Care, 20, doi: 10.1186/s12904-021-00752-z
Patterson, P., Perz, J., Tindle, R., McDonald, F.E.J., & Ussher, J.M. (2021). Infertility after cancer: How the need to be a parent, fertility- related social concern, and acceptance of illness influence quality of life. Cancer Nursing, 44(4), 244-251. doi: 10.1097/NCC.0000000000000811
Paul CL, Warren G, Vinod S, Meiser B, Stone E, Barker D, White K, McLennan J, Day F, McCarter K, McEnallay M. (2021) Care to Quit: A Stepped Wedge Cluster Randomised Controlled Trial to Implement Best Practice Smoking Cessation Care in Cancer Centres. Implementation Science. 16(1),  p.23.
Powell, T., Cohen, J., & Patterson P. (2021). Keeping connected with school: Implementing telepresence robots to improve the wellbeing of adolescent cancer patients. Frontiers in Psychology. 12:749957 https://doi.org/10.3389/fpsyg.2021.749957
Rückholdt, M., Tofler, G.H., Randall, S., Whitfield, V., Washington, K., Fethney, J. and Buckley, T. (2021), Psychological responses and coping behaviour of visiting family members during and following unplanned hospital admission. J Clin Nurs. https://doi.org/10.1111/jocn.15858
Rutherford C, Campbell R, Tinsley M, Speerin R, Soars L, Butcher A, King M (2021) Implementing patient-reported outcome measures into clinical practice across NSW: mixed methods evaluation of the first year, Applied Research in Quality of Life, 16, 1265-84. https://rdcu.be/b0yUc
Rutherford C, Ju A, Treble D, Morstym L, King MT. (2021) Current practices and standards regarding provision of information to women newly diagnosed with DCIS: A national survey. Australian Journal of Cancer Nursing, accepted 23/06/2021.
Rutherford C, Patel MI, Tait M, Smith DP, Costa DSJ, Sengupta S, King MT. (2021) Patient-reported outcomes in non-muscle invasive bladder cancer: a mixed methods systematic review. Quality of Life Research, 30(2):345-366
Sansom-Daly, U. M., Wakefield, C. E., Ellis, S. J., McGill, B. C., Donoghoe, M. W., Butow, P., Bryant, R. A., Sawyer, S. M., Patterson, P., Anazodo, A., Plaster, M., Thompson, K., Holland, L., Osborn, M., Maguire, F., O'Dwyer, C., De Abreu Lourenco, R., Cohn, R. J., & The Recapture Life Working Party. (2021). Online, group-based psychological support for adolescent and young adult cancer survivors: Results from the Recapture Life randomized trial. Cancers, 13(10), 2460. doi.org/10.3390/cancers13102460
Shunmugasundaram C, Dhillon H, Butow PN, Sundaresan P, Chittem M, Akula N, Veeraiah S, Rutherford C. (2021) Patient-reported anxiety and depression measures for use in Indian head and neck cancer populations: a psychometric evaluation. J Patient Rep Outcomes, 5: 44, published online 07/06/2021, doi: 10.1186/s41687-021-00316-y
Shunmugasundaram C, Dhillon H, Butow PN, Sundaresan P, Rutherford C. Enabling cross-cultural data pooling in trials: Linguistic validation of head and neck cancer measures for Indian patients. Quality of Life Research, published online 02/04/2021.
Story, N., Lumby, J., Fethney, J. & Waters, D. (2021) A comparative study of eating behaviours within and between conventional metabolic (bariatric) surgery procedures.  Journal of Clinical Nursing,  
Tait M, Costa DSJ, Campbell R, Norman R, Schug S, Rutherford C. (2021) The QUEST initiative - QUality of life Evaluation Study Assessing Health Related Quality of Life in patients receiving Medicinal Cannabis: Protocol for a longitudinal observational study, JMIR Research Protocols, accepted 27/09/2021.
Tunzi L, Funk T, Brown T, Findlay M, Bauer J. Optimal frequency of individualised nutrition counselling in patients with head and neck cancer receiving radiotherapy: A systematic review. Journal of Human Nutrition and Dietetics. 2021. doi: 10.1111/jhn.12919. (Q2)
Ussher, J. M., Perz, J., Allison, K., Power, R., Hawkey, A., Dowsett, G. W., Hickey, M., Parton, C., McDonald, F. E. J., Davis, I. D., Quinn, G, P., Boydell, K. H., Chambers, S., & Anazodo, A. (2021). Attitudes, knowledge and practice behaviours of oncology health care professionals towards lesbian, gay, bisexual, transgender, queer and intersex (LGBTQI) patients and their carers: A mixed-methods study. Patient Education and Counseling. Advance online publication. doi: 10.1016/j.pec.2021.12.008
van der Kruk S, Butow P, Mesters I, Boyle T, Olver I, White K, Sabesan S, Zielinski R, Chan B, Spronk K, Grimison P, Underhill C, Kirsten L, Gunn KM, Clinical Oncological Society of Australia. (2021) Psychosocial well-being and supportive care needs of cancer patients and survivors living in rural or regional areas: a systematic review from 2010 to 2021. Supportive Care in Cancer. 30(2), pp. 1021-1064. https://doi.org/10.1007/s00520-021-06440-1
Wakefield, C.E., Sansom-Daly, U.M., McGill, B.C., Hetherington, K., Ellis, S.J., Robertson, E.G., Donoghoe, M.W., McCarthy, M., Kelada, L., Girgis, A., King, M., Grootenhuis, M., Anazodo, A., Patterson, P., Lowe, C., Dalla-Pozza, L., Miles, G., & Cohn, R.J. (2021). Providing psychological support to parents of childhood cancer survivors: 'Cascade' intervention trial results and lessons for the future. Cancers. 13(22), 5597. doi.org/10.3390/cancers13225597
Wand T, Collett G, Cutten A, Buchanan-Hagen S, Stack A, White K. (2021). Patient and staff experience with a new model of emergency department based mental health nursing care implemented in two rural settings. International Emergency Nursing, 57, 101013. (cited by 1)
Wand T, Collett G, Cutten A, Dinh M, Bein K, Green T, Berendsen Russell S, Edwards J, White K. (2021) Evaluating an emergency department-based mental health liaison nurse service: A multi-site translational research project. EMA Emergency Medicine Australiasia, 33(1), pp.74-81. (cited by 5)
Wand T, Collett G, Keep J, Cutten A, Stack A, White K. (2021) Mental health nurses' experiences of working in the emergency department of two rural Australian settings, Issues in Mental Health Nursing, 42(10), pp.893-898.  doi/full/10.1080/01612840.2021.1913773
Wong, G., Koo, T., Fethney, J. & Chen, R. (2021) Assessing oral health literacy of university nursing students: a cross-sectional exploratory study. Nurse Education in Practice, 53; https://doi.org/10.1016/j.nepr.2021.103066
Xie H, Morton, Philp S, Balendran J, Tejada-Berges T, Saidi S, Farrell R, Anderson L, Sayer R, Pather S. (2021). The impact of primary HPV screening on negative loop excision histology following biopsy-proven high-grade cervical intra-epithelial lesions. A review from a large tertiary colposcopy unit."  The Australian and New Zealand Journal of Obstetrics and Gynaecology
Ye X, Chang YC, Findlay M, Brown T, Bauer J. The effect of timing of enteral nutrition support on feeding outcomes and dysphagia in patients with head and neck cancer undergoing radiotherapy or chemoradiotherapy: A systematic review. Clin Nutr ESPEN. 2021;44:96-104. (Q2)
Zhang L, Ding D, Fethney J, Gallagher R. (2021) A psychometric evaluation of the Health Literacy Questionnaire for Chinese immigrants: Linguistic and  cultural considerations. Int J Nurs Pract. 2021;e12909.https://doi.org/10.1111/ijn.12909