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Supporting our Patients
As a patient, it is important that you be an active partner in the treatment and management of your interstitial lung disease.
Our clinic doctors and nurses will encourage you to:
- Stay up to date with all vaccinations including seasonal influenza vaccination, pneumonia vaccination (every 5 years) and COVID-19 vaccinations
- Stop smoking and vaping
- Stay active and participate in physical activity appropriate for your disease
- Attend all of your clinic appointments as recommended by your specialist
- Undertake all of the investigations suggested by your specialist
Useful resources
Together with the Lung Foundation Australia, we’ve developed a series of evidence-based resources to help you better understand Pulmonary Fibrosis and the important steps you can take to improve your outcomes and wellbeing.
Disease Specific
| Idiopathic Pulmonary Fibrosis | Information to support patients who have been diagnosed with Idiopathic Pulmonary Fibrosis. |
|---|---|
| Other health conditions and Idiopathic Pulmonary Fibrosis | Common comorbidities that people with Idiopathic Pulmonary Fibrosis may experience. |
| Managing progression in Idiopathic Pulmonary Fibrosis | Provides information on the progression of idiopathic Pulmonary Fibrosis and how to identify and manage common symptoms. |
| Connective Tissue Disease-associated Interstitial Lung Disease (CTD-ILD) | Provides an understanding of the causes, symptoms and diagnosis of CTD-ILD – including information to support symptom management and an overview of the treatments available for CTD-ILD. |
| Scleroderma with Interstitial Lung Disease | Information about the causes, symptoms, diagnosis, management and treatments available for Systemic Sclerosis-related Interstitial Lung Disease (SSc-ILD). |
| Sarcoidosis of the lungs | Provides an understanding of the causes, symptoms and diagnosis of sarcoidosis – including information to support symptom management and an overview of the treatments available for sarcoidosis. |
| Hypersensitivity Pneumonitis | Information about the causes, symptoms, diagnosis, management and treatments available for hypersensitivity pneumonitis. |
Treatment
| Antifibrotic treatments for Idiopathic Pulmonary Fibrosis | Outlines the role of anti-fibrotic medication in Idiopathic Pulmonary Fibrosis treatment and provides information on the use of these medications along with the common side effects that may be experienced. |
|---|---|
| Pirfenidone | Information about the antifibrotic medication, Pirfenidone – including what the medication does, special precautions to follow, possible side effects and what monitoring you will require from your healthcare team. |
| Nintedanib | Information about the antifibrotic medication, Nintedanib (Ofev) – including what the medication does, special precautions to follow, possible side effects and what monitoring you will require from your healthcare team. |
| Mycophenolate | Information about the immunosuppressant medication, Mycophenolate (Cellcept, Myfortic) – including what the medication does, special precautions to follow, possible side effects and what monitoring you will require from your healthcare team. |
| Azathioprine | Information about the immunosuppressant medication, Azathioprine (Imuran) – including what the medication does, special precautions to follow, possible side effects and what monitoring you will require from your healthcare team. |
| Clinical Trials in Lung Diseases | Informs patients of the benefits of participating in a clinical trial and helps provide an understanding of the processes involved. |
General Information
| Life with Pulmonary Fibrosis | Information for people who have been diagnosed with Pulmonary Fibrosis and their Carers. |
|---|---|
| Non-pharmacological treatments | Healthcare therapies for people living with Pulmonary Fibrosis that are not primarily based on medication. |
| Cough and breathlessness | Information about the causes of cough and breathlessness and how to help you manage these symptoms. |
| Living with Pulmonary Fibrosis - how can oxygen therapy help? | Information about the use of oxygen therapy to help people living with Pulmonary Fibrosis. |
| Travelling with Pulmonary Fibrosis | Helping people living with Pulmonary Fibrosis prepare for travel. |
| How can palliative care help you? | Information about the multidisciplinary approach to care for life-limiting, incurable disease, relevant to some types of Pulmonary Fibrosis. |