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Supporting our Patients
As a patient, it is important that you be an active partner in the treatment and management of your interstitial lung disease.
Our clinic doctors and nurses will encourage you to:
- Stay up to date with all vaccinations including seasonal influenza vaccination, pneumonia vaccination (every 5 years) and COVID-19 vaccinations
- Stop smoking and vaping
- Stay active and participate in physical activity appropriate for your disease
- Attend all of your clinic appointments as recommended by your specialist
- Undertake all of the investigations suggested by your specialist
Useful resources
Together with the Lung Foundation Australia, we’ve developed a series of evidence-based resources to help you better understand Pulmonary Fibrosis and the important steps you can take to improve your outcomes and wellbeing.
Disease Specific
| Idiopathic Pulmonary Fibrosis | Information to support patients who have been diagnosed with Idiopathic Pulmonary Fibrosis. |
|---|---|
| Connective Tissue Disease-associated Interstitial Lung Disease (CTD-ILD) | Provides an understanding of the causes, symptoms and diagnosis of CTD-ILD – including information to support symptom management and an overview of the treatments available for CTD-ILD. |
| Scleroderma with Interstitial Lung Disease | Information about the causes, symptoms, diagnosis, management and treatments available for Systemic Sclerosis-related Interstitial Lung Disease (SSc-ILD). |
| Sarcoidosis of the lungs | Provides an understanding of the causes, symptoms and diagnosis of sarcoidosis – including information to support symptom management and an overview of the treatments available for sarcoidosis. |
| Hypersensitivity Pneumonitis | Information about the causes, symptoms, diagnosis, management and treatments available for hypersensitivity pneumonitis. |
Treatment
| Clinical Trials in Pulmonary Fibrosis | Informs patients of the benefits of participating in a clinical trial and helps provide an understanding of the processes involved. |
|---|---|
| Antifibrotic treatments for Pulmonary Fibrosis | Outlines the role of anti-fibrotic medication in Pulmonary Fibrosis treatment and provides information on the use of these medications along with the common side effects that may be experienced. |
| Pirfenidone | Information about the antifibrotic medication, Pirfenidone – including what the medication does, special precautions to follow, possible side effects and what monitoring you will require from your healthcare team. |
| Nintedanib | Information about the antifibrotic medication, Nintedanib (Ofev) – including what the medication does, special precautions to follow, possible side effects and what monitoring you will require from your healthcare team. |
| Mycophenolate | Information about the immunosuppressant medication, Mycophenolate (Cellcept, Myfortic) – including what the medication does, special precautions to follow, possible side effects and what monitoring you will require from your healthcare team. |
| Azathioprine | Information about the immunosuppressant medication, Azathioprine (Imuran) – including what the medication does, special precautions to follow, possible side effects and what monitoring you will require from your healthcare team. |
| Rituximab | Information about the immunosuppressant medication Rituximab (MabThera, Ruxience, Riximyo, Truxima) including what the medication does, special precautions to follow, possible side effects and what monitoring you will require from your healthcare team. |
General Information
| Life with Pulmonary Fibrosis | Information for people who have been diagnosed with Pulmonary Fibrosis and their Carers. |
|---|---|
| Non-pharmacological treatments | Healthcare therapies for people living with Pulmonary Fibrosis that are not primarily based on medication. |
| Cough and breathlessness | Information about the causes of cough and breathlessness and how to help you manage these symptoms. |
| Other Health Conditions and Pulmonary Fibrosis | Common comorbidities that people with Pulmonary Fibrosis may experience. |
| Living with Pulmonary Fibrosis - how can oxygen therapy help? | Information about the use of oxygen therapy to help people living with Pulmonary Fibrosis. |
| Travelling with Pulmonary Fibrosis | Helping people living with Pulmonary Fibrosis prepare for travel. |
| How can palliative care help you? | Information about the multidisciplinary approach to care for life-limiting, incurable disease, relevant to some types of Pulmonary Fibrosis. |
| Preventing and Managing Respiratory Infections | Information about preventing and managing respiratory infections for people living with Pulmonary Fibrosis |
| Managing Progression in Pulmonary Fibrosis | Provides information on the progression of Pulmonary Fibrosis and how to identify and manage common symptoms. |